Wednesday, March 7, 2018

Can't even find a title tonight. Sales and shares (especially of the new project platform) very much needed.

Photo copyright Aji, 2018; all rights reserved.

There's supposed to be no change in the weather, but it certainly looks like a storm. Sadly, the forecast is probably right, and all we'll get are the joint aches from whatever makes its way around us again.

She-Wolf had her follow-up today, and the vet concurred with our decision to reintroduce the Pred at the regular dose and titrating the frequency upward until we hit daily again. He made it clear today that he never expected her to last remotely this long and so he's thrilled to see how well she's doing; he puts it down to how closely we're watching her responses and adjusting everything accordingly. He also endorsed switching out a decent percentage of her kibble/wet mix with meat to help keep her glucose levels down to a manageable level, so she'll be getting a diet that makes her much happier. Shade, on the other hand, is still having issues. We think we're going to need to get the horse vet out to look at her, because we really think there's something going on that we can't see.

I'm still having issues, too, unfortunately. A huge amount of chest pain last night (in that same spot, the one I've made literally EVERYONE aware of, doctors and hospitals alike, and no one seems to be interested), and then another very, very bad episode this morning. I can't make plain to other people how truly terrifying they are. But I am very demoralized tonight, feeling very fragile, which I absolutely hate, and I've gotten nothing accomplished on the platform and thus nothing more done on raising the scratch to pay off my medical bills. I feel completely buried, and I don't see a way out of it right now. That will change when this passes again temporarily, but right now, I cant see how or when and no matter how hard I try, I can't make it happen. I'm way, way, way down in a black hole, and I don't know when I'm going to see light again. I have so much work to do, and I can't function. The rest is last night's cut-and-paste, because I am at such a low ebb that I can barely force myself to read through it again to edit. 

Part of this is by way of explaining why there's no progress on the new platform. Unfortunately, I've been forced today to accept that there will be none, ever, unless and until I can find someone trustworthy and experienced in IgnitionDeck installs to finish it for me. My autoimmune disease long ago eroded my cognitive abilities in ways I really don't like to contemplate, but since this thing, whatever it is, in November, my brain just simply cannot function in certain ways any longer. This is one of them. I can get technical support until the cows come home, but if I do not have the ability to grasp it and execute it (and I do not, not remotely anymore), it does me no good whatsoever. So if you know of someone who meets the above specs who would be available to do this remotely, I'm looking to pay someone to do it. [Yes, I'm still compos mentis enough to realize the irony in having to pay somebody to set up this particular platform, but I have no choice in the matter. It has to be done, and it won't get done until I can find someone to do it for me, and I don't believe in trying to get people to expend their talent and skill for nothing.]

The overall goal is my $25K+ in emergency medical bills, but for now, I'm trying to raise an initial $1,700 to take care of two specific bills: the local ambulance and one hospitalist's fee. We're $145 of the way toward it. A caveat: I have a lot of kinks to get worked out yet, but PayPal is now theoretically linked to the progress meter on the site. I say "theoretically," because I've just discovered that I apparently have to set up at least one other page to make the subscription "purchase" possible. Eventually, if you subscribe via PayPal (it's a monthly thing like Patreon), it will show, although for now the only way to do it is to hit the PayPal "Subscribe" button. I'm hoping to get that figured out and fixed tomorrow. I also need to figure out how to pin it to the main page, so for now, the only way to access it is here. Please share this link around on social media and elsewhere.

Tony's coming by on Thursday to spec out what remains to be done on the house. Because of the cold (colder now than most of the winter, actually), the guys probably won't actually resume work until April, but for now, they'll figure out the order of things and what will be needed in terms of materials. In the meantime, I've still got a pile of medical bills that need to be handled, which means we need sales and I need to get my subscription platform up and running (and you can still subscribe via PayPal even now). So here are the links: 
  • Tonight's post elsewhere (trying to brighten my own mood yet again);
  • A way to buy me coffee (which actually goes to She-Wolf's & my medical bills);
  • Wings's direct PayPal link;
  • Wings's site, for sales;
  • Wayfair gift cards, to replenish all the furnishings that the RV has destroyed in one way or another.
  • Partial registry #1, from Bed, Bath and Beyond. There are new kitchen-y things on it now, stuff that I didn't realize we'd need to replace (either because the RV ruined it or because we gave it away when we had to downsize).
  • Partial registry #2, from Wayfair. There are some things left on both registries that I thought by now I might be able just to buy outright, but medical bills (mine and She-Wolf's both) have to come first.

Please check out the new platform, share the links, get your friends to participate. I've got a long road ahead of me, just in terms of diagnosis and, I hope, eventually treatment. Being able to pay off the medical bills will go a long way toward keeping me as healthy as possible in the meantime. Thanks, everybody, from both of us.





All content, including photos and text, are copyright Aji, 2018; all rights reserved. Nothing herein may used or reproduced in any form without the express written permission of the owner.

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