Monday, March 4, 2019

Now we wait.

Photo copyright Aji, 2019; all rights reserved.

Last night's storm that brought us nothing; today isn't giving us much, either — just the odd momentary flurry here and there. 

Wings got the MRI on his shoulder this morning; now we wait to see whether it is indeed a tear or not. He went back to work in the studio this weekend: one order, a little extra inventory, and he's been itching to get back to work on what will a massive (and massively valuable) piece, a traditional butterfly concha belt. He's had to stop again to let his shoulder rest. If that is what it is, this will be worse, in its way, than the near-catastrophic damage to his left shoulder eleven years ago, because he's right-handed. [I say "near-," because I kept insisting, and — again — an outside doc took it seriously and got him the referrals needed to save his shoulder and his range of motion.] Anyway, the point is that we want it not to be a tear, just a strain that needs a little extra time to heal.

Still no word from the surgeon; I doubt he's seen the last set of labs until today. We may have to go very nearly at a moment's notice; my doc wanted me in for surgery this week, but I have no idea what the scheduling will be. Again, now we wait. So many variables, and so little information available right now. The stress is crushing. And after dealing with Raven bleeding all over me the other night, and worrying about how his body would deal with the anesthesia given the advanced state of his own cancer, I'm dealing with both massive physical pain and a lot of shortness of breath and other stuff yesterday and today. It's suddenly much harder than it was, this knowing-but-not-knowing; symptoms and dysfunctions that I thought I'd made peace with by putting them down to my autoimmune disease or other stuff suddenly take on a whole new color now. What's being caused by this tumor in my throat? What isn't? What's evidence of its spread? So much has been wrong for so long, and I've had to adjust to that, and now it's all been upended in a new and dangerous way. 

And as I keep saying, I'm going to have push sales really hard now, because this is escalating fast, and I'm already in the hole on medical stuff more than $30K again. I'm so tired of being dunned by the people who helped put me here by ignoring this, but here we are. That's adding to all the stress, and I have got to figure out a way to bring in enough to get out from under some of it before it literally kills me. We paid out four figures to the tax man on Friday, and there will be more of that to come. We'll have shelled out about a thousand more by the end of this week, plus the $1,600 for the path bill that I couldn't pay online because they neglected to include my patient number, so now I have to wait for the paper copy. If we have to pay up front for the surgery, there will be no surgery, so for the sake of my own survival, I have to pray that they take me in, do it, and then bill me. My doc has now said that they will not do that, but we all know how that goes; she's not affiliated with them and they have n't given me any information of any kind yet. Yes, I'm scared. Now is when all those doubts creep in, when you wonder whether all the other symptoms you've attributed to something else all this time are in fact tied up with this, and if so, what that means for your outlook (or lack of one). And the fear over the prospect of not being able to get the needed surgery would be paralyzing if I didn't spend literally every minute pushing it as far out of mind as possible.

The Pueblo's been closed since the first of February, and will remain so through most of March. Sales are vanishingly slim, and there's a lot of year ahead of us. We now know that it is cancer, that the costs are going to skyrocket very fast, and that we have no way of paying for it, and neither of us cares; we're doing this. Determination is the word; with Wings's help, I'm going to beat it. So much fear intertwined with all of this, and no end in sight. Even so, all this stuff is piling up fast and I have to get us through the whole year, not just the next two weeks, so please share the links (or use them, if anyone's so inclined):
  • My Patreon, The Interstices (Writing Between Worlds) (and if you subscribe today you won't be billed until March 1st for February);
  • Wings's site, for sales, with lots of new items posted;
  • Wings's direct PayPal link;
  • A way to buy me coffee (which actually goes to all of our medical bills, which continue to mount);
  • Amazon wishlist, which mostly consists of animal and household stuff, with the kibble back on it; we gave several of our existing bags to a local disabled vet with a starving rescue dog who needed the help;
  • Partial registry #1, from Bed, Bath and Beyond. I've added two or three new kitchen-y things on it now, stuff that I didn't realize we'd need.
All we want, to be able to have some confidence in making it through the whole year with whatever they're going to find going wrong in my body, is to make some sales. That's it: sales; nothing else. But I haven't been able to make even that happen, and the stress is telling. Good vibes for Raven are still welcome (he's still hanging with us, and I need him to be safe while we're out). But I could use some, too. We all could also use some help with sharing Wings's site (and testimonials, if you got 'em). Thanks.



All content, including photos and text, are copyright Aji, 2019; all rights reserved. Nothing herein may used or reproduced in any form without the express written permission of the owner.

1 comment:

  1. I just received my Social Security so I sent some money to you. Remember we are taking over the world in 2020 so you need to get well. Lots of love and healing energy coming your way. I even got Pixie awake from sleeping on her pootie pad so she sends purrs.

    ReplyDelete